From Education to Action

Sickle Cell Anemia is a genetic blood disorder where red blood cells, which are normally round, become rigid and crescent-shaped. This shape makes it harder for the cells to move through blood vessels, leading to a variety of complications.


General Knowledge

Learn the basics of Sickle Cell Anemia: What it is, how it affects the body at a biological level, and key facts every patient, family member, or community member should know.

Treatments

Explore treatment options, from medications to blood transfusions and bone marrow transplants, with clear, easy-to-understand guidance for patients and families.

FAQs & Myths

Get answers to common questions and debunk myths about Sickle Cell, helping you separate fact from misconception and make informed decisions.


Canada does not know how many people are living with

Sickle Cell Anemia.

Estimates suggest about 6,500 Canadians, but this is likely a serious undercount. Without accurate data, people living with SCD remain invisible, and what we don’t count, we don’t prioritize. The absence of a national registry means gaps in specialized and emergency care, slower access to new therapies and clinical trials, and ongoing inequities in pain management and outcomes.


This is why we are partnering with the Sickle Cell Disease Association of Canada to help raise $100,000 to build the foundation of a national SCD registry, which would be a tool for survival, equity, and accountability!


Connecting patients, families, and volunteers to the resources and support they need. Explore local clinics, support groups, events, and volunteer opportunities to stay informed and engaged in the community.

Local resources & clinics

Finding the right care is essential for managing Sickle Cell Anemia. Here you’ll find a list of specialized clinics, hospitals, and healthcare providers across Calgary.

image from Freepik
image from Freepik

Volunteer Opportunities

Volunteering is a meaningful way to support the community. This section provides guides and resources for those looking to contribute—whether at hospitals, community events, or awareness campaigns.


Explore a curated selection of journal articles highlighting recent advances in Sickle Cell research.



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